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so much more than a haircut…

February 28, 2014

Huck and EZ have been hanging out together every week since they were 6 months old, and their babysitter would walk around with one of them strapped on her front and the other one strapped on her back.

Now at age four, the boys share a mutual love for Star Wars and Legos… preferably Star Wars Legos.

In the weeks since EZ was diagnosed with cancer, the boys have only seen each other two times. And that has been hard on both of them.

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So when the time came to decide how to deal with EZ losing his hair from chemotherapy, the moms agreed that the best way to help EZ feel better about shaving his head, was for the boys to shave their heads together.

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And seeing as Huck had always wanted a buzz cut, this seemed like the perfect plan. So we had our date scheduled. Celebratory hair cut presents were purchased and wrapped. I arrived and picked out the best spot for light in front of a big beautiful mirror. The hair stylist arrived and we were all ready.

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But when EZ arrived, we learned that he was in a lot of pain and he was not having a good day. It became very clear, as Huck was in mid-shave, that our perfect plan may not work out the way we imagined.

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The adults tried to reason with EZ, letting him know that shaving his head was a much better option than having his hair fall out in patchy clumps every day.

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But it wasn’t until I was driving home that I could really understand how this was about so much more than a hair cut for this four-year-old little boy. This little boy has had his life turned upside down and inside out… he can no longer walk, he can not use the bathroom without pain, he hasn’t eaten in days, his bones hurt, he gets poked, prodded, taped and needled every day.

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And in the middle of all this change, he lost his father, the only person who had ever given him a hair cut in his life, to a heart attack. It makes perfect sense that the last thing EZ wanted was to shave his head.

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So he very clearly said “no,” and they got back in the car with his beautiful curls untouched.

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Despite the tough morning and the head shaving protest, Alex did have some very good news to share about EZ’s progress with chemotherapy. Since so many people have so generously sent their love and support to this family, I wanted to share Alex’s update:

EZ’s last two scans reveal that the chemo has currently stopped his cancer from progressing. It has also reduced his tumors by 50% in size. This is a good start to a very long marathon of treatments that EZ will endure.

Dr. Month, EZ’s oncologist, shared that while his lungs and spine look worse to the eye, the bones will take the longest to heal. His lungs just look worse because he had a chest tube (from original biopsy) and he just got over a terrible cough and cold.

She reminded us of how important keeping him in his little Frida brace is, so his spine is protected. Meanwhile, we are pumping him with bone broth, probiotics, wheat grass and other homeopathic remedies.

To all sending your distant healing and prayers, we are deeply grateful and thankful for each and every bit of support, hope and love we are receiving. The children and I, as well as our extended family, are missing Roneil deeply. EZ is very clear on what has happened and shares that he misses his dad everyday. LU also is being very expressive and sharing her grief. We are pursuing different grief support measures.

A million thanks to all. XO, ap

9 Comments leave one →
  1. February 28, 2014 10:54 pm

    I am repeatedly amazed by the struggles and challenges that people endure. My heart is with EZ, his family, and friends.

  2. Stella Davies permalink
    March 1, 2014 12:16 am

    There are lessons in this story for us all.. Mostly to respect each other and our personal style choices :) Thank you for sharing… What a gift of friendship. The “I actually need a haircut” reminder is also good for us all. Go on EZ! xoxoxo

  3. Carol Harper permalink
    March 1, 2014 5:20 am

    What amazing courage!

  4. Susan Deixler permalink
    March 1, 2014 6:15 am

    Thank you for this beautiful update and pictures. Prayers do work and there are so many sending them out to the universe for health and strength for EZ and his amazing family. Love to all,
    Susan D

  5. March 1, 2014 7:33 am

    Prayers from Wenatchee, Washington coming your way

  6. March 1, 2014 9:34 am

    My heart goes out to you all. Courage.

  7. March 1, 2014 10:05 am

    So touching. Thank you for the update. My heart hearts after reading this, and I am so amazed by the strength and courage you were able to capture in your photos.

  8. March 1, 2014 12:06 pm

    Your pictures and comments are so meaningful for all of us. Please continue allowing us to learn about the hard stuff as well as the good. So much Love and Prayers and Blessings are being sent to Alex and Zeke and Lu and her family and Huck and close friends.

  9. Linda Sturdivant permalink
    March 2, 2014 2:59 pm

    Oh, I am so happy to see these pictures. Thank You for posting. I saw Carlos last week and he told me about the 50%, and I was so glad that you posted it. We are all on our knees praying for All of you. this is great to see what the progress is, even though we know its still a Long Road ahead of you. My heart aches for your loss. I love you all, and don’t stop thinking of you and what you are going through, and I Believe. I know your going away now for 11 days tomorrow. Our prayers will reach you where ever you are. Love You. Always, Linda

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